We haven't found the old remote yet, but the new one has such a vivid pink cover we always see it. So far, so good.
J is working on the pool deck's second coat of paint this morning. Yesterday morning after we got back from the Meeting, even though we had just a few hours before needing to leave for Sis' house he decided to "start the painting". Start turned into finishing the whole thing just before we needed to leave, of course.
During the week he and I had moved all plants and in-bird-cage furniture ( glass table, chairs, pool noodle holder, etc) to either the far end of the birdcage or actually outside. That was a project. During which he talked with Chris-across-the-street and offered him the big ol glass table, as it was too big for us. (Now, I had told J this when he originally brought it home after having found it on the curb...did he listen? No. Lol...so we are now agreeing. Took a year or so...) Fortunately Chris was thrilled at the size, and offered us his glass table in exchange. J happily agreed; so it's on the lawn waiting to be scrubbed down, the umbrella cloth has been washed clean, the 2 metal chairs we have need foot pads of some kind.
So this morning is the second coat on the pool deck. After we got home last night, he went and started the pool cleaning, which had been neglected all week, and finished that this morning too. Meanwhile I was completely wiped out, as I have been for a few days.
Monday I saw my PCP, and we had an awesome visit. Turns out she is dealing with a similar lung issue, caused by mold and dampness in the building; the building roof actually caved in one day a few months ago, which gave her an asthma attack at work, meaning she had to file a workman's comp claim and is now receiving meds and injections to deal with her decreased lung functioning. The story is so typical of my former employer...denying all along there was anything wrong with the building despite multiple employees' health complaints...and literally the roof had to cave in before they believed her when she kept insisting there was a problem. Oh, I could go on.
But the amazing thing is she completely understands where I am health-wise because she is dealing with identical issues. She is only 36, but she is one smart cookie. I really love her. She is so funny, so witty and quick. We laugh like loons at each visit now matter how distressed or worried or concerned I am about whatever issue I'm there for.
She reassured me I am still considered disabled. I needed her to document that so that the Disability people will continue to consider me disabled and therefore keep paying those benefits--even though I have been overpaid and won't get any money until 15 months from now. June of 2023, maybe?
I haven't seen her since November when she gave me the devastating news in the first place, so I had to break it to her about having had to retire when my employee benefits ran out. (Actually I think I told her on a phone call in January, but she didn't remember.) She was properly both shocked and happy for me. She totally understood the freedom I feel at being out of that particular office, wanting to know all the details of what was happening there now.
Anyway, we left it that I will go back in July, for my annual physical and checking in on any other things related to the lungs. By then I will have had the second bronchoscopy, too. My recent CT did not show any changes--so, good news that it's not worsening, and frustrating news it's not showing any improvement. Yet.
That was a good day, and we were both happy with that visit. Tuesday was the plumber's initial visit to determine what was wrong, and Wednesday morning early he was back to actually do the repair work. Now my tub hardware works like a charm, doesn't leak, and the hot and cold pipes have been corrected. We should have done this a long time ago; but then, one doesn't want to spend $260 if that isn't necessary.
Wednesday afternoon I got sidetracked outside and ended up doing almost 2 hours' worth of pruning, weeding, stacking loose brush after pulling it out of the growth along the fences, raking loose yard debris into piles. J was out there too working on the rain water barrels, and then he got sidetracked into helping me.
I'd thought it was Tuesday and that we had plenty of time to drag these piles out to the curb for Wednesday's pickup, and was crushed to learn that it was Wednesday already, and therefore we'd missed the pickup and would have to wait another week. Because once we had that conversation, J decided he could go back to what he was doing, and just leave the various piles out there. Argggh! I wanted him to take it all out there that day so I could say that job was "Done!" but a 6-day deadline encourages him to relax until the day before. Sigh.
So not only is the patio furniture and rugs and pool noodles, etc all over the lawn, the various yard debris piles are out there too. It's so hard for my confused and disoriented yet OCD brain to just look at these everyday, being helpless to change it. I'm certainly learning Life Lessons about patience, and letting go of expectations.
Friday I was still tired from Wednesday's exertions, and yet we had multiple errands to get done. So we hit the grocery store, and Lowe's, and my pulmonology doc's office to get the missing chart notes from January, and Publix to pick up J's rx, and by that time I was done. I was so tired I was barely civil to J, for which I apologized, but he is a saint, and understood I was not feeling up to snuff. Then he felt guilty for all the work I had done, feeling he should have kept a better eye on me. So we talked about that briefly.
Most of the week I was working on my needlework every afternoon, and I so enjoy that. It's so relaxing. Wednesday was a weird day, which is probably why I overdid it. Plus, the weather was absolutely perfect and I wanted to be outside as much as I could before the godawful humidity sets in.
Saturday afternoon at Sis' was very nice. We got to talk privately, and clarified some of the issues we had faced, and that was such a relief. We're all good now. Food was yummy, and it was so nice to see BIL, and his son and daughter who had driven up from Orlando.
J made a vegan chocolate cake, and we sang Happy Birthday, and I gave her the Sister pillow/cross stitch I'd been making and finished the night before; and also I'd found a Freddie Mercury figurine, which went over well. It was a happy day.
J was dealing with his own demons last Monday; he thought Zeke was having a scan that day, and was going to be learning the results. When no one called to share those results, he was convinced he was deliberately being left out of important family concerns, and was alternately raging or deeply upset and hurt. He just knew it was bad news that no one knew how to break to J. He imagined those entire conversations, and left messages for his daughter and his daughter-in-law and even Z himself, reminding them he was "patiently waiting for news".
Finally daughter V texted to remind him the scan wasn't until Monday the 21st. Oh, he was livid, thinking "they" had rescheduled that appt, and what was the dr thinking, and these are such incompetent fools, and the whole medical system is broken, and on and on. I finally said, you know normally the scan is done and then there is an appt or telephone call to discuss results a few days after that. How, why do you think the scan was re-scheduled?
Turns out that yes, originally the scan wasn't scheduled until tomorrow, Monday, and J had misunderstood the day and date entirely. All the info was given to him in a text previously and he had just jumped ahead an entire week. So this whole scenario, this whole outrage and hurt etc was something he did to himself.
When he fully realized this and all its implications, he could finally laugh at himself, and so he shared this little episode with several people over the next couple of days, joking about his "zero to death" panic, and the anguish he'd endured. That was a huge thing, a huge lesson.
He gives me a lot of credit for helping him, but I don't see this. I just get so frustrated at his insistence that any perceived "slights" are directed at him personally, making him the victim. I tried to carefully explain this, but he doesn't agree that's what he was feeling; and tried to explain to me exactly what he was feeling. It's okay--we exchanged viewpoints, and the resolution is that he made a mistake, and needs to slow down in general when processing info regarding dates. We both know his extreme fear for Zeke, and how this has colored everything under discussion recently. Maybe the scan will show progression of the disease, maybe not. There is nothing he can do from here, or even if he was there in person, except pray. It is such a helpless feeling.
MissS is coming over this afternoon. Her main work project (for the past 4 months) is finally over. I know how tired she is.
TYG