Well, this has been a quite different week than I expected.
I woke up Monday and called the pulmonologist office, leaving a message for the NP about what was happening. She called me back around 3:30 asking if I could come in right then, or offered me Tuesday at noon, which is what I took. And then I messaged the PCP office asking about the referrals I'd requested. I still haven't heard back from them.
Tuesday I got to the pulm office at noon, and discovered I'd lost another 2 lbs. This is the lowest I've weighed in a few years, since the beginning of the cancer. Not sure if it's related to the lung stuff at all. This time after DrZ listened to my lungs he -- instead of saying "you sound good"-- this time he said, "Can you drive down to the NSB office right now for an infusion?"
This sounded scary at first, but it just meant I was having a lot of difficulty breathing. I of course drove down, and the infusion is another antibiotic, cefexime (sp?) and decadron, a steroid, to help with the inflammation. It took about 30 minutes total.
Then I drove home and spent the afternoon quietly. This has now happened every single day, including today, Sunday. Every day I drove down for my appt at 12:30. MissS came with me Wednesday, and while I was still coughing afterwards, it was much easier to breathe; the shortness of breath is easing. We stopped at the WM after that to pick up a few things, and walking through the store did seem exhausting but not as bad as before. I just have to take my time.
Sleeping is another matter. After the first 4 nights with almost no sleep, I decided to go back on the half of an alprazolam each night, which helped immediately. This is on top of the relaxing gummy, and the two melatonin. I still didn't sleep through the night but it was a lot better.
MissS also fixed my Kindle's email, something to do with the password. And Wednesday night I did the Zoom AlAnon meeting.
Thursday was J's birthday in Heaven; he would have been 88. I was sad, and lonely, and I still can't believe I will never see him again. I heard from Veronica and Brenda. And Miss S came over after the infusion to mow my front lawn. Kit made me a Shepard's pie for my dinner, and MissS brought me a little pot of mini-roses, which about brought me to tears. I did eventually get in the pool with MissS after the mowing, but I was so tired I really hesitated. I'm glad I did though-- it was relaxing, and soothing, and I felt a lot better. We talked about J, and cried some, and shared memories we have, and tried to think of the happy times.
I was expecting an Amazon shipment, which was to include some new non-allergenic, non-scented detergent among other things but it hadn't arrived... so that was a bummer. I was planning on doing laundry but that wasn't possible. It did finally arrive Saturday evening. So I did my two loads, and that always makes me feel better. I'm in such a routine, sigh.
Friday was a much happier day. The day after J's birthday-- I always check the milkweed plants out front in their pots. That morning I found 3 little baby Monarch caterpillars! They were so pretty, munching on the top of one of the bigger pots' leaves. I was thrilled. I took photos, and after an hour or so I went to check on them.
Sadly, one was missing, one was busily being eaten by a giant wasp/hornet type of insect and there was just one left. As soon as the wasp was done and off the plant, I brought that big pot straight out to the pool enclosure for protection. Poor little thing. Each morning now he is much bigger. I noticed a small hole in the enclosure screen so I will have to patch that up today.
The hornets or whatever they are really scare me. I stopped to fill up the car on Thursday and when I opened the gas cover another giant hornet flew out of the small paper nest he'd built INside the cover! I shrieked a bit and danced around trying to escape his agitation. Then the damn credit card was refused for some reason, so I just got back in the car and drove up to the next station, and had no problem there. $3.99 a gallon. Sigh. Damn the Felon.
One afternoon I read the second third of the book Dad loaned me, which is so intense but also fascinating in a grim way.
I heard from Cousin Bob too, asking me to send him an updated contact and addresses and other information on both my parents' sides of the family. I had absolutely no energy to even respond, yet, but I suppose I should do this. Not really in the mood, but he at 80 is working on it. Sis pointed out I am the oldest now and probably have the most information... Seems strange.
Saturday morning I had a few household chores to manage before heading off to the Meeting. I was feeling a lot better by then, and my friends are relieved I did manage to get some help. I didn't have time to hang around afterwards to chat, because I had to do another infusion, Day 5. My nurse Thea had said it was okay to just get there as soon as possible after my meeting, so I managed to arrive around 11:20, and was done fairly quickly.
I then raced back up to the vet's office to get Missy's meds, but they closed at noon which I hadn't realized; I got there at 3 minutes after that and they were already gone. So Missy won't get any meds tomorrow morning...I'll just skip that day, see how she does.
Back at home I did the cat boxes and then sat for a few minutes before heading out to get MissS, as we were planning a visit up to Dad bringing lunch; Sis and BIL had originally planned to be with a friend for a memorial service, but he ended up being delayed. So Sis and BIL stayed home and we all had lunch there, catching up. So bloody hot!
We discussed their remodeling of the beach house bathroom plans, and everyone's health issues, and the window/door installations, BIL's back issues, his dad's pelvic fracture a month ago, the hoped-for dates for Sis' trip to NM, and the trench planning, and all of MissS's new information (the two jobs and the new kitten, Pudge).
Suddenly it was 3:30 and we were all wiped out. Seemed like everyone was ready for naps! MissS and I left, and I dropped her off before heading home. I was planning on watering out front and refilling the bird feeders but had no energy. I just settled in and watched an old JohnWayne movie, one of my favorites. I was suddenly ravenously hungry and had about 8 Oreos after my half sandwich. But I was in bed and sleeping by 9:00. This combination of antibiotics and the steroids is hard on the system.
This morning I made sure to have my regular breakfast and nebulizer treatments, before leaving for the infusion by 10:30. Thea listened to my lungs and wanted me to come in tomorrow again, which will be Day 6. She'll check with DrZ and I might go in again also on Tuesday. Then my regular appt with him is on the 4th, to see how I'm doing after this intensive treatment.
I'm supposed to pick up an rx for myself today, but I will wait until tomorrow. I have had on my to-do list for weeks now the plan to vacuum the car... well, maybe this coming week. I made up a new list and really there is nothing major, but just little nagging things I remember in the moment and if I don't write it down, it's gone.
I did remember to de-spider the enclosure when I got back from the infusion today. And I cleaned the bathroom, and cleaned up a huge mess Sammy made during the night. He knocked over a glass vase I had filled with little glass stones and some flowers, and it was scattered all over the kitchen floor.
That was my exciting week. I keep remembering J, and how supportive he was, and how he would be with me at every single appt, taking care of me. I was sometimes frustrated that I was never alone, but it's sure funny how things change. I would give anything if he were here now with me.
MissS will be over later, and we'll get in the pool before the expected rain arrives-- there's been no rain since Monday? Tuesday? Amazing how quickly things grow.
TYG